Participants wanted

BMIPB

The Brain Injury Rehabilitation Trust (BIRT) invites you to take part in a memory and information processing assessment which will take around 45-60 minutes to complete. You will be paid £10 for your time.

We are looking for anyone aged 18 and over who has not experienced any form of brain injury or stroke. We are currently testing in Burgess Hill, West Sussex and hope to extend to different locations in the future.

What is the project about?

We have updated and extended a set of materials used in the assessment of memory: the BIRT Memory and Information Processing Battery (BMIPB). We would like to test them as well as gather data for use in clinical settings.

What is the BMIPB?

The BMIPB is a collection of tests used by Clinical Psychologists to measure the effects of damage to the brain on memory and similar abilities. It can help treating clinicians plan individual rehabilitation programmes and follow a person’s recovery. It is also useful in conditions such as Alzheimer’s to see how rapidly the condition is progressing and to provide help and support accordingly.

For more information:

If you are interested in taking part, please email: memory@birt.co.uk or call 01444 237 294, alternatively fill in the form below (you will need to provide at least one method of contact) and we will be in touch.

* Your information will only be used by the Brain Injury Rehabilitation Trust and the divisions within the Trust. None of your information will be given or sold to any third parties. (You will have the option to opt out at any time.)



Your participation in this project will provide valuable information which will be included in the newly updated BMIPB. The BMIPB is not only used by BIRT but by many other clinical services.

The BMIPB can be used when assessing the effects of brain injury on a person’s memory and information processing and is therefore useful in planning their rehabilitation and measuring their recovery.

Who is eligible to take part in the project?

Most people aged 18 - 89 and above may participate, unfortunately we can't include you in this research if you feature on the listed criteria.

Do I have to take part?

It is entirely up to you to decide whether or not to take part.

If you do take part, you will be:

  • given this information sheet to keep and will be asked to sign a consent form
  • paid £10 for your time at the end of the first session
  • free to withdraw from the study at any time without giving a reason

If you choose to withdraw, unless you inform us to the contrary, we will keep any anonymised data that you may have supplied thus far. Any personal data will be destroyed.

What will I have to do?

You will be asked to complete a number of tests which have been designed to assess memory and information processing. The initial test should take around 45-60 minutes to complete. You will then be contacted again by phone five to nine days later to follow up on some of the tests you completed initially. This should take no longer than 15 minutes.

We may ask you for permission to make an audio recording of your testing session, in order to ensure our researchers are working consistently. If you do not wish for an audio recording to be made, please inform the researcher.

You may also be contacted at a later date by one of our researchers, who will invite you to return to our centre and complete a similar assessment. This will also include being contacted again by phone five to nine days later. Again, it is your decision to take part and you will be free to withdraw at any time. If you agree to take part in this second stage, you will be paid £20 for your time at the end of the session. Not everybody will be invited to complete the second assessment.

If you do not wish to be contacted for retesting, please inform the researcher.

What are the possible risks of taking part?

There are no risks or disadvantages of taking part in this project. However, if any results from our assessment battery indicate anything that may be relevant to your healthcare you have the choice to be informed.

What are the possible benefits of taking part?

Your participation will provide us with information about the memory and information processing abilities of healthy individuals. The information that we are gaining from this project will help to better understand the effects that a brain injury or brain disease has had on a person, which can then be used to plan and measure the effects of their rehabilitation. The information may also be useful in other areas, such as education or work.

Will my taking part be kept confidential?

All information collected about you during the research will be kept strictly confidential. You CANNOT be identified from the information gathered.

Your personal data will be kept secure (password protected) and only seen by the research team who carry out your assessment . Your name and anything else that could identify you will be removed. This is called anonymised data.

The anonymised data will be shared and analysed by the research team. The data will be held by the Brain Injury Rehabilitation Trust on encrypted computers.

What will happen to the information gained from this project?

We need to know how healthy people perform on our tests so that we can see the effects of brain injury. The information gained from this project will be published in tables as part of the new BMIPB. Some results may also be published in a specialist journal within two years of the research ending.

You will NOT be identified in any report.

Complaints

If you have any complaints about the project, please contact Dr Sara da Silva Ramos, Research Fellow. E-mail: sara.dasilvaramos@thedtgroup.org Phone: 01403 799 160.

Who is organising and funding the research?

The research is being funded by The Brain Injury Rehabilitation Trust which is part of The Disabilities Trust and the means by which The Disabilities Trust provides its brain injury services. In 2016 BIRT is proudly celebrating 25 years as the charity leading brain injury rehabilitation across the UK.

The Disabilities Trust is a leading national charity, providing innovative care, rehabilitation and support solutions for people with profound physical impairments, acquired brain injury and learning disabilities as well as children and adults with autism.

For further details about BIRT, please visit www.birt.co.uk

Who has reviewed the project plan?

The project plan has been reviewed and approved by The Disabilities Trust Research Ethics Committee.

Contacts for further information:

For further information please contact Dr Sara da Silva Ramos, Research Fellow (contact details as above)

Thank you for your help.