After a brain injury, a person is likely to experience a variety of changes in many different areas of their life. These changes may not just affect the person with brain injury, but also the people closest to them. Therefore, it is very important to understand how an acquired brain injury can affect a family and to continuously seek to highlight areas of need that current systems and services may not address, as this can help us improve the support offered to people after a brain injury.

The Disabilities Trust has been working in collaboration with researchers at the University of Surrey on a project aiming to understand how brain injury affects families, how families manage following a brain injury, and what support is available post-injury, as well as what contributes to positive outcomes and adjustment for families after an acquired brain injury.

In the project, the concept of “family” includes whoever a brain injury survivor is closest to (e. g., a partner or close friend). The study will use qualitative methodology to get a picture of family experiences of brain injury including relationships, support services and how diversity was considered throughout their journey.

We hope that the results of this study will inform future developments and improvements to rehabilitation services and support for families in the future, and we will share them in this space. In the meantime, to learn more, get in touch with or directly with the team: